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Update from Fortis Foundation

Posted by on 9:32 am in Updates | 0 comments

The Neurology team at FMRI is in constant touch with Roona Begum’s parents and take regular feedback on her progress. A few local doctors have also been identified and provide reports on her health. We are grateful for the support of people who made this possible for Roona, as she has fought odds to survive and now has miraculously shown tremendous progress. We hope that the future medical interventions planned by Neurology team at FMRI would give her a better quality of...

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Update 20 – Roona Begum discharged

Posted by on 2:59 pm in Updates | 0 comments

Roona Begum, a one-year-old child from Tripura was allowed to go home by doctors after nearly four months of treatment to correct a rare disorder that caused her head to double in size. Her treatment was partly paid by funds raised by two Norwegian students who started an online campaign after seeing her photos. Doctors allowed a one-year-old Indian baby to go home Friday after nearly four months of treatment to correct a rare disorder that caused her head to double in size. Roona Begum and her parents left New Delhi and headed home to a...

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Update 19 – Video and news articles

Posted by on 4:37 pm in Updates | 0 comments

Video and news articles View the video of Roona Begum’s latest surgery here. See the latest news articles about Roona Begum below: France24 G1 Globo La société solidaire des hommes et durable pour la planète MBL AFP Blog...

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Update 18

Posted by on 2:15 pm in Blog | 0 comments

From Fortis Foundation: 10th June 2013 – Baby Roona is doing very well. She has been shifted from the ICU to the ward. 18th June 2013 – Glimpses of baby Roona at FMRI. Click here to view the gallery. 20th June 2013 – Baby Roona is progressing well and is stable. Treating surgeon, Dr Sandeep Vaishya, FMRI, said, “Given the complexities of the case, the prognosis is much better than expected and Baby Roona is responding well to the treatment protocol. She is reacting to stimuli and showing signs of cognition. A third...

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Update 17 – Roona is doing well

Posted by on 9:26 am in Updates | 0 comments

From Fortis Foundation: 1. (27.05.2013) Baby Roona is doing well in the isolation room. She is on 80 ml feed every 2 hourly. A POP (Plaster of Paris) helmet has been ordered for her for further cranial molding. Rest same conservative management is being followed 2. (28.05.2013) One episode of fever which was brought down with sponging. Helmet still awaited. Feed continuing at 80 ml every 2 hours. Antibiotics stopped. Rest conservative management 3. (29.05.2013) Baby Roona is doing very well, her feeding tube has been removed and she is on a...

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Update 16 – MyGoodAct is paying 1 900 000 INR (35 000 USD) for Roona’s treatment

Posted by on 7:40 am in Updates | 0 comments

Update 16 – MyGoodAct is paying 1 900 000 INR (35 000 USD) for Roona’s treatment

It has become clear that Roona’s treatment is much more complex than anticipated. The initial prediction of the cost for one surgery was 1700 USD. However she needs more than only one surgery and she needs to be treated for a long period. Fortis Healthcare and Fortis Foundation flew Roona Begum in for treatment in mid-april. The cost of her treatment has increased and they now expect it will have a total cost of 50 000 to 55 000 USD. MyGoodAct has transferred 1 900 000 INR (equivalent to 35 000 USD) to Fortis Healthcare to pay for most...

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Update 15 – Indian medics conduct ‘perfect’ op on baby’s swollen head

Posted by on 7:42 pm in Updates | 0 comments

Update 15 – Indian medics conduct ‘perfect’ op on baby’s swollen head

By Ammu Kannampilly (AFP) NEW DELHI — Doctors carried out life-saving surgery Wednesday on an Indian baby suffering from a rare disorder that caused her head to swell to nearly double its size, in a case that aroused sympathy worldwide. AFP was given access to film the surgery on 15-month-old Roona Begum, during which doctors used a surgical drill to pierce her skull before draining fluid from her head in an operation lasting more than an hour. The youngsters’ parents, who have spent the last month at the hospital on the outskirts of...

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Update 14 with images

Posted by on 7:37 am in Updates | 0 comments

Roona Begum underwent her first surgery yesterday morning. The surgery was done essentially to remove the excess lax skin at the back of her head. The operation took over two hours to complete but with huge relief we can confirm that everything went smooth. Depending on her condition in the next couple of days, the doctors will decide on when her major surgery will take place to insert the shunt. In general, Roona is looking much better. The circumference of her head has reduced from 94 cms to 67 cms as the fluid is being gradually drained...

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Update 13 – Roona is thriving well

Posted by on 9:10 am in Updates | 0 comments

Update 13 – Roona is thriving well

Message from the hospital where Roona Begum is being treated: “Baby Roona one and a half year old girl is admitted in FMRI with a massive hydrocephalus. The child is thriving well. She is on calorie dense feeds being given at appropriate rate and intervals to support her nutritional requirements. Her head circumference has considerably decreased from 94 cm to a 74 cm through continuous fluid drainage. Pressure bandages are being applied to remodel the shape of her head. She had come to the hospital with severe skin infection due to her frail,...

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Update 12 – Images

Posted by on 6:34 pm in Updates | 0 comments

Images of Roona Begum in the hospital getting treatment: A new happy announcement: Fortis Foundation has decided to take up another case of a year old Sajal Sarkar from Taltala village in Tripura. See images below. (Edit: 20. may 2013 – The treatment of Roona Begum has cost a lot more than expected and Fortis Foundation is not able to take up any other cases until they have the funds to suppport it. The total cost of Roona Begum is expected to be 50 000 to 55 000...

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